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Wednesday, February 8, 2017

Let's Fight Blindness:  Join Warriors4Sight On Feb. 25

It's not easy having your world cave in around you, but that's what I've learned to deal with each day.  I found out I was afflicted with a hereditary eye disease called Retinitis Pigmentosa (RP) when I was on active duty in the US Navy. It is a degenerative retinal disease that causes tunnel vision and eventually blindness. All my life I have struggled with little or no night vision, having difficulty seeing people's hand gestures, recognizing where a person is and not seeing the night’s starry skies. 

At first I was depressed and I felt like giving up. But here I was a mom, wife to a disabled Veteran,and now a disabled Veteran myself. Although I felt sad, I knew I couldn’t quit. I decided I needed to be a good example for my family and would try to help them see that when life doesn’t go your way you change your perspective and you gain resiliency.
My vision loss gave me access to some excellent support programs to help cope with the never ending changes.  Just last year I became an "inpatient" at the VA's Southwestern Blind Rehab Center.  They helped me learn how to improve my mobility with my cane, they taught me how to use special lights and adjust my computer accordingly. And they taught me about new technology of reading books through a Victor Reader, speech aspects on the Iphone and much more.  The six week program was a great experience.  

Although learning new technology is important, in dealing with vision loss it's also important to help find ways to cure and prevent diseases like mine.  That's why I support the Foundation Fighting Blindness. Through their research funding I enrolled in a six year study that proved taking 15,000 IUs of Vitamin A in the palmitate form could help slow our disease. Although I have 10 degrees of vision in each eye and  I know it’s not the 90 degrees the majority of folks have, I remain thankful for my “Tunnel of Light”.
 
One of the ways I support FFB and their research efforts is through the Arizona VisionWalk  It's a family friendly three mile trek that takes us around the walking path at Steele Indian School Park on Feb. 25th at 9 a.m..  It's one of those rare times where you'll see hundreds of people with red and white canes and guide dogs helping us navigate the circle. 

You can join us as we continue to “fight on” for research, for cures, and for hope in saving our vision. You can do so by joining our team and becoming a Warrior 4 Sight, or you can make a contribution online.  

It takes all of us to win this battle and we hope you will join us in becoming Warriors4 Sight!
http://www.fightblindness.org/site/TR/VISIONWALK/VisionWalktr?team_id=68238&pg=team&fr_id=4902  
 

Monday, November 16, 2015

PR Pro of the Year Acceptance Speech, PRSA International Conference, Nov. 9, 2015, Atlanta GA

Thank you Kathy for that lovely introduction.  I am so honored to be here as a US Navy Veteran and a PR Practitioner and I can tell you I am humbled to represent our profession, our military and our veterans as I accept this honor.

Many people may not know it, but today, as we are gathered here, there's one percent of our population who are watching our backs as they serve us with their military service in the Army, Navy, Marines, Air Force, Coast Guard or Merchant Marines.  To those military members who are with us today, can you please stand for a moment to be
PRSA President Kathy Barbour APR presents the
PR Pro of the Year Award to Paula Pedene APR, Fellow PRSA.
recognized?

And in our country, they are followed by another group of people who have defended our freedoms. They are the seven percent of the population who have left military service and are now called our veterans.  So to any of our veterans who are out there today who served in the Army, Navy, Marines, Air Force, Coast Guard or Merchant Marines, please stand for a moment so we may recognize you as well?

To this 8%, the other 92% say thank you for our freedoms. Your service allows us to assemble here today, to take part in this conference, to vote in our leadership venues and much more.  We owe you a debt of gratitude.

As our society gathered together on Saturday for the Leadership Assembly, our CEO Joe Truncale spoke about seven PRSA Values.  Of these values, which include:
1.    Respect for the Individual
2.    Courage
3.    Honesty/Integrity
4.    A Servant's Heart
5.    Innovation, creativity and risk taking
6.    A commitment to personal and professional growth and
7.    Achievement....
I want to take a moment to highlight a few that I know helped me during my 22 months of whistleblower reprisal when I was "banished to the basement" by senior leaders at the Phoenix VA Health Care System.  In my opinion, these leaders didn't share these values, as it was okay to reprise against a service disabled veteran.   

But what seemed to be okay for them, wasn't okay for me or Dr. Sam Foote, who led the charge to expose the VA Wait Time Scandal.  For folks like Sam, myself and others what they were doing needed to be stopped.  Someone had to take a stand to fight it. Someone had to help our veterans and that is what compelled Sam, myself and others to collaborate together and fight this battle against some pretty oppressing odds.  

So of these PRSA values which are the ones I felt were the most prominent in our lives during this time?  Let's see if I can explain....

Did our fight take courage?  One could say it did.  Day after day, I had to go into the facility, where I once was the "face of the VA" and work in a position seven notches below my pay grade.  Here I would help veterans, not with communications venues and media relations, but in checking out books, logging patients onto the library computers, faxing documents, providing support services such as making copies and handing out pens and pencils.  I did so with a smile, while all the while living in a fog of depression.  The depression came from knowing that there was so much good I could be doing in a communications realm and yet despite having the talent and ability to do so to face the inability to do so while dealing with verified reprisal by senior leaders.

Did it involve honesty?  Yes it did.  According to the evidence, there was misleading information and as a result it was hindering the care to our nation's veterans.  We knew that we would have to share our facts, convince people to listen to us and in some cases to take a stand for ethics even if it meant standing alone.  

Did it mean having integrity?  Yes it did.  We were waging a battle with the most senior leaders at the Phoenix VA Medical Center.  It was their word against ours, their word against the patients, and their word against those who were "taken out of their jobs".  It was interesting to see how the battle unfolded.  Among the staff there were those who were my steadfast supporters and who would constantly pray for me.  There were those who began to question my ethics and integrity because after all I was "taken out of my job".  And then there were those who willingly jumped on the reprisal bandwagon and constantly tried to throw us under the bus through their words, their efforts, and their abuse of leadership authority.   For Sam it was the senior leaders trying to paint a picture of him as a "lazy doctor" to Congressional leaders.  And to members of the media to portray him as one who "didn't know the numbers" or who didn't "grasp the real effect of what they were doing".  Really?  In our books, delayed care is denied care and it needed to stop.

Although it was stopped then, what still bothers me that to this day, is that some of those leaders are on paid administrative leave, while others are still in their jobs.  To VA and our veterans, I think this is a disgrace. So if you can join me in taking a stand, I hope you will by calling for #VAAccountability.

Did our efforts take a Servant's Heart?   We believe it did.  We all know now that it was Dr. Foote who was telling the truth, and he paid a dear price for it.  He had to retire from VA earlier than he had hoped.  He had to throw rocks at an agency he adored.  And he had to stand alone to expose the VA wait time scandal.  It was during this time that I helped Sam with public relations advice and counsel and to put him in touch with staff on the House Veterans Affairs Committee.  To them and to Congressman Jeff Miller, who truly broke the story about the horror of the waits and delays in veterans’ health care, we owe a debt of gratitude. We made it through by focusing on those who were supporting us--our families, our true friends, my legal team of Roger French, Josh Klinger and others--and my wonderful PRSA colleagues nationally, in Phoenix and through the Western District.

Yet perhaps most importantly it meant having faith in God.  For you see, even though I didn't always handle the situation as well as I would have liked--I drank, I cried, and I lived in a gray fog for many months-- in looking back at it now I can honestly say that God had me where He needed me to be.  And that is what matters the most.

As Phoenix VA Whistleblowers our lives will never be the same after being "banished to the basement" or for exposing the VA wait time scandal.  But what I can say is this, I'm ready for the future whatever that may be and I pray now to let God be THE guide in my life.  

I thank you for this honor, I'm truly humbled, I'm proud to be a member of PRSA and I am truly proud to serve our veterans.  

Paula L. Pedene APR, Fellow PRSA

Wednesday, April 30, 2014

The Beautiful Bond of Motherhood

At one point in my life, at the wise age of 21 (hah), I swore off marriage and family.  I was having so much fun, being in the Navy, traveling, writing, getting into broadcast journalism. I felt content.  This "wisdom" lasted until I was about 27 when I began to change my mind and started thinking about the next phase of my life.  Fortunately at the age of 29, I met Bill Pedene.  We were married and years later we were blessed with two children.

Paula and Steven at the Navy Lodge in San Diego
On April 30, 1995 our second son Steven Pedene was born. As a child his light blond hair shone bright like his personality, ambition, and smile.  He was gregarious from the get go. Today marks his 19th birthday so I sit here reflecting back on the life we've had together thus far.  There's been so much--first words, first steps, first hugs and kisses, first birthdays, first grade, field trips, plays, musicals, tournaments, and more.  All of these have made an impact on my life and the majority of them have been for the better.

So today I'm thankful that the "wisdom" of my youth was changed by someone far wiser than me (thank you Lord!) because this day my life is much fuller and better because I'm a mom.

Happy Birthday Steven, I wish you a year full of joy, happiness, faith filled inspiration and much success.  Love you!  Mom. 


Friday, April 18, 2014

A Birthday Blessing

Today is my birthday, and although I know there is all things fun happening on Facebook, there's joyful wishes on LinkedIn, and I have a beautiful Google birthday doodle on my Google page, the thing that's already made my day, in just the first hour, is a telephone call from my sister Denise.

Those of you who are not baby boomers may wonder why a phone call could be so special. Well, because of all the things that happen today, that one thing, brings everything home to me.  You see our mother used to call each of her six children early in the morning on our birthdays. She'd be the first voice we'd hear.  She'd be the first person to listen to what was happening, our hopes, our dreams our challenges.

So hearing a voice, and receiving a call, early in the morning on my birthday is still special to me.  I grew up when phones hung on the wall, when you had a rotary dial, when the operators would be the primary source or assistance and when our voices--the spoken word--were phenomenal ways of keeping in touch.

It's been 23 years since my mom has moved on to be with the Lord.  I am grateful to her and my father for so many things, her special phone calls, their guidance, their love, their support, but primarily for my faith.  For I know that Denise's call this morning, was a gift from our Heavenly Father, who knew that was what I needed today.

May God watch over you and keep you in His care.

Thursday, February 14, 2013

We're Walking as Warriors 4 Sight On March 2, 2013

     I found out I was afflicted with a hereditary eye disease called Retinitis Pigmentosa (RP) when I was on active duty in the US Navy. It is a degenerative retinal disease that causes tunnel vision and eventually blindness. All my life I have struggled no night vision, having difficulty seeing people, recognizing faces, and a long time ago I stopped seeing the night’s starry skies. After having my first son, I was told I needed to give up driving, start walking with a red and white cane so people knew I was legally blind and I was informed I would need to leave my Navy Reserve Career behind.
     As a mother, wife and primary breadwinner for our family I became concerned `with the question, how am I going to survive this? The realization brought me to my knees and I came face-to-face with the question, who am I? At first I was depressed and angry and I felt like giving up. But here I was the mother of a young son, wife to a disabled Veteran, a federal employee and now a disabled Veteran myself. Although I felt sad and lonely, I knew I couldn’t quit. I decided I needed to be a good example for my family. I needed my family to know that life doesn’t always go your way and you cannot give up or quit.
     I enrolled in the VA’s Low Vision Program and learned how to use a cane, special lights and adjust my computer accordingly. I enrolled in the YMCA play groups and the Public Relations Society of America and found friends and colleagues to help me with rides to and from events and activities. I learned the necessary skills to keep me safe, independent, and improve my quality of life. I sought out community, state, and federal resources to help me “find my way” back to myself.
     One of the resources I tapped into was the Foundation Fighting Blindness. Through their research funding I enrolled in a six year study that proved taking 15,000 IUs of Vitamin A could help slow our disease. So today, at 54, I still have 10 degrees of vision in each eye. I know it’s not the 90 degrees the majority of folks have, but I am thankful for my “Tunnel of Light”.
     Six years ago FFB started VisionWalk and I’ve been giving back to them ever since. This year we have combined the two teams Veterans & Friends for vision and AZ Blind Dragons Martial Arts into one powerful team, Warriors 4 Sight! Our goal this year is to raise $2500.00 or more. Last year AZ Blind Dragon raised $1000.00 and Veterans & Friends for Vision raised over $1000.00. Together we should easily achieve our $2500.00 fundraising goal. The Team Captains are Tom Hicks and myself (we are both blind and legally blinded Veterans).
     We hope you can join us as we continue to “fight on” for research, for cures for hope is saving our vision. We hope you can join our team and become a Warrior 4 Sight!!! Sincerely, Paula L. Pedene APR Legally Blinded Veteran & Warrior 4 Sight Here is the link to the Warriors 4 Sight page:

http://www.fightblindness.org/site/TR/VISIONWALK/VisionWalktr?team_id=68238&pg=team&fr_id=4902  

We appreciate your support and hope to see you on March 2! 

Thursday, August 16, 2012


Crossing the College Threshold


Steven and Robert at HS Graduation
Steven and Robert at Horizon HS Graduation May 24, 2012
       My son Robert crossed the threshold today attending college orientation with his mom.  I could hardly believe I was there because he had said earlier “mom college students don’t bring parents to orientation.”  Then by some miraculous change of heart, he came to me and said “I guess I can bring you with me to my orientation, if you want to go?”  Hate to say it but I jumped for joy much to his chagrin.
       As we set foot on the amazing campus of Paradise Valley Community College, it brought back memories.  I know they’re different than what Robert’s going to see and for that I’m thankful.
       For me, college wasn't a given.  My parents’ house burnt to the ground when I was a junior going into my senior year.  We lost so many items (my favorites were my letter sweater from Volleyball and a desk my dad had made for each of us kids) but the lesson I learned was the items were just things.  Fortunately, my family was safe, and with the phenomenal support of the Prescott community we regained our lives.   For me that life event meant taking a different path to get to college.  I turned to the US Navy, signed on the dotted line, endured the entrance physical,  and raised my hand to take the oath of enlistment to defend my country and in so doing earn the college benefits afforded to me.
    My first day at college was at a conference room at the Naval Facility in Bermuda.  Here about 12 people gathered with books in hand, to study for the 8-week condensed course through the Department of Defense partnership with the Los Angeles Metropolitan College.  I had passed several CLEP exams and was on my way to living the dream by earning my college degree.
       At each duty station, in-between a full-time job, I took my classes.  I went to work, went to school, studied and tried to sneak in some free time with friends for movies, the club, and the ever proverbial gym to stay Navy fit. Our conflicts of that day were quite different than what we have today.  We had a war in the Falklands, the incident in Grenada, the bombing of the Embassy in Beirut and other operations monitoring subs, people, dealing with spies, and the list goes on.  
        When I transferred to Washington DC, to anchor the Navy’s first TV show called Navy News This Week, the proximity of DC to the University of Maryland meant I could set foot on a REAL college campus.   I have to tell you, I still remember that day.  I walked around the campus full of lush green landscape.  I couldn't believe the massive size of the University of Maryland, the number of students, and the awe I felt.  My efforts were rewarded in 1986 with a Bachelor’s Degree in Political Science.
University of Maryland Diploma      So when I crossed that threshold of a new college campus with my son, it brought back a flood of memories and a bunch of gratitude.
     I’m thankful I had the chance to take advantage of the college benefits the Navy offered.  I’m thankful I had the chance to travel and to meet some truly amazing and inspirational people along the way.  I’m thankful I had the chance to learn and to continue learning to this day.  I’m thankful for the people God placed along my path.  And perhaps most importantly I’m thankful we have such a wonderful country where these freedoms are available to us each day.  I can tell you from my Navy service, we, the USA, don’t often realize how wonderful our life is. 
       So, to all the college entrants who are crossing their thresholds, know that there will be unexpected help along the way, that you will learn if you apply yourself, that you have an opportunity to impact others, and if you persevere you’ll earn a distinction that will remain with you forever, as “college graduate”.  Robert we’re wishing you all the best!   Love, Mom

Sunday, May 27, 2012

Two Lists You Should Look at Every Morning - Peter Bregman - Harvard Business Review http://ping.fm/TBGJx

Sunday, May 6, 2012

Great #MothersDay gift story. For me flowers, card photo reign supreme you? http://ping.fm/YwReB